If you are kind enough to dump a bucket of ice over your head, please also be kind enough to donate www.alsa.org
The entire reason I picked up a minor in health and wellness in college is because my mom’s life was taken from this terrible degenerative disease. Often compared to a melting candle whereby the mind, or the wick, stays intact while your body, the wax, melts right off of you. Eventually you can’t walk or talk, eat, scratch an itch or wipe your rear, and you die as your organs shut down and eventually don’t have enough strength to breathe.
ALS is not a money making disease. With around 30,000 people inflicted it simply doesn’t generate enough revenue for Genentech and big pharma. Trust me. As a child I attended ALSA meetings with my mom, dad and sister and we would hear of some amazing new trial drug that helped someone walk better and even stop using their cane only to get the news later that that same drug would never be available or mass produced. $$$$$$$$$$$
ALSA needs all the money it can get. Thank you to those of you who are helping to raise awareness. Please, please, please make your donation.
My mom fought this disease for 15 years and she raised awareness by being pushed through the LA Marathon in pouring down rain by a great group of volunteers. She survived by her faith in God and her two young children who were six and ten when she was diagnosed. She lay dying two days after Thanksgiving on cold white sheets and a morphine drip, lips dry as the desert, at 50 years young when I was 21 and my sister 25.
Her dying wish was that she would be able to lift her arms to hug her family. Something she hadn’t been able to do since we were….I can’t even recall. That’s how bloody excruciating and heart wrenching this disease is.
In Memory of Karen Brumbaugh, the most patient, beautiful, loving, kind hearted angel in the world. 10-27-53 to 12-2-03